Care Burden and Coping Strategies among Caregivers of Paediatric HIV/AIDS in Northern Uganda: A Cross-Sectional Mixed-Method Study

Table 2

Mean scores of caregivers’ responses to care burden assessment questions (n = 113).

Item no.	ZBI care burden questions	Mean	SD	Variance
B1	Do you feel that your child needs more help than he/she needs?	3.07	1.03	1.07
B2	Do you feel that you don’t have enough time for yourself because of the child?	1.48	1.30	1.70
B3	Do you feel stressed caring for the child and trying to meet other responsibilities for your family or work?	2.43	1.32	1.75
B4	Do you feel embarrassed about your child’s condition?	0.75	1.17	1.37
B5	Do you feel angry when you are with your child?	0.76	1.10	1.20
B6	Do you feel that your child negatively affects your relationships with other family members or friends?	0.89	1.29	1.67
B7	Are you afraid of what the future holds for your child?	1.88	1.52	2.31
B8	Do you feel your child is dependent on you?	3.46	0.79	0.63
B9	Do you feel strained when you are around your child?	0.55	1.04	1.10
B10	Do you feel your health has suffered because of your involvement with your child?	1.33	1.31	1.72
B11	Do you feel that you don’t have as much privacy as you would like because of your child?	0.86	1.22	1.50
B12	Do you feel that your social life has suffered because you are caring for your child?	0.59	1.13	1.28
B13	Do you feel uncomfortable about having friends because of your child?	0.53	1.17	1.36
B14	Do you feel that your child seems to expect you to take care of him/her as if you were the only one he/she could depend on?	3.38	0.96	0.92
B15	Do you feel that you don’t have enough money to take care of your child in addition to the rest of your expenses?	1.23	1.45	2.09
B16	Do you feel that you will be unable to take care of your child much longer?	1.52	1.43	2.06
B17	Do you feel you have lost control of your life since your child’s illness?	0.64	1.09	1.18
B18	Do you wish you could leave the care of your child to someone else?	1.12	1.36	1.84
B19	Do you feel uncertain about what to do about your child?	1.34	1.41	1.98
B20	Do you feel you should be doing more for your child?	3.58	0.69	0.48
B21	Do you feel you could do a better job of caring for your child?	3.02	1.16	1.34
B22	Overall, how burdened do you feel?	2.50	1.23	1.52

SD: standard deviation.