Development of a Provisional Model to Improve Transitional Care for Female Adolescents with a Rare Genital Malformation as an Example for Orphan Diseases
Table 2
Channels planned for utilization and implementation of the prospective results.
Setting
Prospective measure
ZSGF
Implementation and evaluation of the provisional template at and around the ZSGF
Other centres
After evaluation further launch of the transitional care program to other centres
Networking I
Developing professional knowledge and skill by information/teaching material, regional workshops for physicians, for example, gynaecologists, general practitioners, and paediatricians as well as other medical professions and allied health professionals
Networking II
Developing professional knowledge and skill by information/teaching material for professionals of educational and social professions (e.g., teachers, social workers)
Tailored information for distribution
Age-adjusted information material for young people for use for example, in schools Introduction of the topic in school books, for example, explaining genital malformations Tailored partner-and parent-information, for example, age-adjusted flyers Information for public and health policy makers
Internet platform
Youth-friendly internet offer Links to the centre’s internet platform from professional societies and patients’ and women’s organizations
