Quality of Life in Caregivers of Patients with Brain Tumours: A Systematic Review and Thematic Analysis

Table 1

List of themes and their descriptions alongside distribution of 111 included domain names.

Theme	Description	Number of domains assigned to theme
Caregiving burden and adaptation	The practical implications resulting from the lifestyle changes brought on by becoming a caregiver. Includes domains relating to increased burden and workload, changes to normal activities and coping strategies employed to manage these changes	20
Existential and self	The inner thoughts and reflections on current changes to lifestyle and future implications. Includes elements examining fears for the future, spirituality, and self-esteem	14
Family and social support	The informal support structures, both physical and emotional, available to caregivers from within their family and wider social network. Includes assessments of caregiver satisfaction with family and social support, family wellbeing and functioning, and assessments of domestic stability and opportunity	27
Finances	Assessments made of the financial impact of becoming a caregiver	5
Information needs	Assessments of the degree to which caregivers require, and are supplied with, information on varying aspects of their new role including knowledge on disease and treatment and gaining help and support	4
Physical symptoms and functioning	Assessments of the physical health impact of becoming a caregiver	24
Psychological symptoms and wellbeing	Assessments of all domains of psychological health within caregivers. Includes assessments of specific domains such as anxiety and depression as well as assessments of the impact of psychological disturbance on caregiving role	29