Development of a Core Set of Self-Management Support Needs of Esophageal Cancer Patients: Results from a Delphi Study among Healthcare Professionals
Table 3
Final list of important topics.
Domains
Most important†
Very important‡
Important§
Esophageal cancer information
Physical consequences of disease
Stage of disease
Specific diagnosis information
Prognosis of disease
Symptoms of esophageal cancer
Treatment information
Treatment success
Complimentary treatments
Available treatments/treatment options
Tests and procedures involved in treatment
Side effects of treatment
Risk of treatment
Purpose of treatment
Progress during treatment
Physical effects of treatment
Treatment plan/description or logistical information
Reducing side effects of treatment
Advantages of treatment
Prognosis information
Life span or the survival rate
Recurrence of cancer
Chance of cure
Effect on life plan or long term goals
Expectations for the future health condition
Metastasis
Outcome of no treatment or delayed treatment
Pre- and rehabilitation information
Recovery time
Complications
Side effects
Follow-up care
Nutrition during treatment
Nutrition during recovery
Follow-up information
Maintaining physical health or physical activity
Prevention
What a patient can do
†At least 90% rated a topic as 7–9 on the Likert scale and ≤10% rated 1–3. ‡At least 80% rated a topic as 7–9 on the Likert scale and ≤15% rated 1–3. §At least 70% rated a topic as 7–9 on the Likert scale and ≤15% rated 1–3.