Research Article

Development of a Core Set of Self-Management Support Needs of Esophageal Cancer Patients: Results from a Delphi Study among Healthcare Professionals

Table 3

Final list of important topics.

DomainsMost importantVery importantImportant§

Esophageal cancer informationPhysical consequences of diseaseStage of diseaseSpecific diagnosis information
Prognosis of diseaseSymptoms of esophageal cancer

Treatment informationTreatment successComplimentary treatments
Available treatments/treatment optionsTests and procedures involved in treatment
Side effects of treatmentRisk of treatment
Purpose of treatmentProgress during treatment
Physical effects of treatment
Treatment plan/description or logistical information
Reducing side effects of treatment
Advantages of treatment

Prognosis informationLife span or the survival rateRecurrence of cancer
Chance of cureEffect on life plan or long term goals
Expectations for the future health conditionMetastasis
Outcome of no treatment or delayed treatment

Pre- and rehabilitation informationRecovery time
Complications
Side effects
Follow-up care
Nutrition during treatment
Nutrition during recovery

Follow-up informationMaintaining physical health or physical activityPrevention
What a patient can do

At least 90% rated a topic as 7–9 on the Likert scale and ≤10% rated 1–3. At least 80% rated a topic as 7–9 on the Likert scale and ≤15% rated 1–3. §At least 70% rated a topic as 7–9 on the Likert scale and ≤15% rated 1–3.