Research Article

Reporting Real-World Data on Prostate Cancer Treatment Outcomes to Consumers: The Prostate Cancer Report Card

Table 1

Characteristics of qualitative interview participants.

Age (years)Years since diagnosisRisk levelTreatment/s received

74ThreeHighExternal beam radiotherapy and hormone
73TwoLowLow-dose brachytherapy
74ThreeHighExternal beam radiotherapy and hormone
68FourAdvancedHormone/degarelix
85ThreeHighExternal beam radiotherapy and hormone/Eligard
68Four and halfLowLow-dose brachytherapy
69TwoAdvancedChemotherapy/docetaxel and hormone
71One and halfLowActive surveillance and then surgery
78Two and halfLowActive surveillance/watchful waiting—not sure
77ThreeHighExternal beam radiotherapy and hormone
70Three and halfLowExternal beam radiotherapy alone
67One and halfLowLow-dose brachytherapy
72TwoHighHormone alone
73FiveLowActive surveillance

Self-reported risk levels could be different from clinical reports due to difficulty in understanding risk definition. Members of the consumer advisory group were predominantly men who had undergone radical prostatectomy, and hence we purposively selected other treatment types for this phase of feedback.