Research Article

Association between Advance Care Planning for Older Adults and Family Caregivers’ Sense of Security in Home Care Settings: A Prospective Cohort Study

Table 1

Participants’ characteristics and implementation rate of advance care planning.

Total (n = 169)Family caregivers’ relationship with clients
Spouses (n = 94)Children (n = 75)
n (%)n (%)n (%)
Mean ± SDMean ± SDMean ± SD

Characteristics of clients
 Age85.6 ± 6.482.4 ± 5.789.7 ± 4.8<0.001c
Gender
  Male84 (49.7)68 (72.3)16 (21.3)<0.001a
Family composition
  Living alone11 (6.5)0 (0.0)11 (14.7)<0.001b
  Living with spouse65 (38.5)63 (67.0)2 (2.7)<0.001a
  Living with others (other than spouse)93 (55.0)31 (33.0)62 (82.7)<0.001a
Diseases (multiple answers allowed)
  Dementia65 (38.5)24 (25.5)41 (54.7)<0.001a
  Cerebrovascular disease58 (34.3)35 (37.2)23 (30.7)0.372a
  Heart failure34 (20.1)18 (19.1)16 (21.3)0.725a
  Cardiovascular disease (other than heart failure)28 (16.6)20 (21.3)8 (10.7)0.065a
  Cancer26 (15.4)14 (14.9)12 (16.0)0.843a
  Diabetic/metabolic/endocrine disease25 (14.8)15 (16.0)10 (13.3)0.633a
  Digestive system disease21 (12.4)8 (8.5)13 (17.3)0.084a
  Chronic obstructive pulmonary disease20 (11.8)12 (12.8)8 (10.7)0.675a
  Neurological disease20 (11.8)15 (16.0)15 (6.7)0.063a
  Musculoskeletal disease14 (8.3)5 (5.3)9 (12.0)0.117a
  Fractures10 (5.9)2 (2.1)8 (10.7)0.024b
  Pneumonia9 (5.3)5 (5.3)4 (5.3)0.628b
  Urologic disease8 (4.7)6 (6.4)2 (2.7)0.225b
  Renal disease7 (4.1)2 (2.1)5 (6.7)0.140b
  Psychiatric disorder (other than dementia)6 (3.6)2 (2.1)4 (5.3)0.241b
  Refractory skin ulcer5 (3.0)2 (2.1)3 (4.0)0.394b
  Autoimmune disease3 (1.8)1 (1.1)2 (2.7)0.416b
  Others2 (1.2)0 (0.0)2 (2.7)0.195b
Physical functiond
  Moderate and severe83 (49.1)35 (37.2)48 (64.0)0.001a
Cognitive impairment levele
  Severe67 (40.1)25 (27.2)42 (56.0)<0.001a
Medical procedure
  Not receiving medical procedure112 (66.3)62 (66.0)50 (66.7)0.923a
Service use
  Welfare equipment110 (65.1)60 (63.8)50 (66.7)0.701a
  Outpatient visit81 (47.9)50 (53.2)31 (41.3)0.125a
  Regular home-visit by physicians68 (40.2)31 (33.0)37 (49.3)0.031a
  Adult daycare64 (37.9)29 (30.9)35 (46.7)0.035a
  Home help service57 (33.7)22 (23.4)35 (46.7)0.001a
  Home-visit rehabilitation44 (26.0)22 (23.4)22 (29.3)0.383a
  Home medical treatment management instruction35 (20.7)18 (19.1)17 (22.7)0.575a
  Short stay28 (16.6)12 (12.8)16 (21.3)0.137a
  Daycare with rehabilitation23 (13.6)16 (17.0)7 (9.3)0.148a
  Home bathing service20 (11.8)6 (6.4)14 (18.7)0.014a
  Home-visit dental care12 (7.1)6 (6.4)6 (8.0)0.684a
  Home-visit by pharmacists8 (4.7)4 (4.3)4 (5.3)0.509b
  Temporary home-visit by physicians8 (4.7)4 (4.3)4 (5.3)0.509b
  Outpatient rehabilitation2 (1.2)2 (2.1)0 (0.0)0.308b
Characteristics of family caregivers
 Age71.9 (10.4)79.7 ± 5.562.3 ± 6.0<0.001c
Gender
  Male47 (28.1)26 (28.0)21 (28.4)0.952a
Relationship with the clients (spouse or child)
  Spouse94 (55.6)
Employment status
  No employment or absent129 (79.1)81 (92.0)48 (64.0)<0.001a
Economic situation
  Having sufficient financial resources21 (12.5)15 (16.1)6 (8.0)0.113a
Family caregivers having burden60 (35.5)27 (36.0)33 (35.1)0.904a
Family caregivers’ sense of security regarding home care
 Sense of security score (T0)20.7 ± 3.720.3 ± 4.021.2 ± 3.20.108c
 Sense of security score (T2)20.8 ± 3.620.4 ± 3.921.3 ± 3.00.089c
 Positive change in the sense of security score84 (49.7)45 (47.9)39 (52.0)0.594a
ACP was conducted91 (53.8)44 (46.8)47 (62.7)0.040a

ACP = advance care planning; SD = standard deviation; T0 = first time-point; T2 = three months later time-point. aChi-square test. bFisher’s exact test. cWelch’s t-test. dAssessed using the bedridden levels of the Ministry of Health, Labour, and Welfare (Ranks J and A–C); Moderate and Severe: Ranks B and C. eAssessed using the rating of dementia of the Ministry of Health, Labour and Welfare (Grades I–IV and M); and Severe: Grades III, IV, and M.