Research Article

Exploring the Sharing and Legitimacy of Experience-Based Knowledge of Living with Acquired Brain Injury in Two Practice Communities

Table 2

The themes resulting from utilizing a deductive coding scheme in the analysis of interviews with members of the education group and field notes from meetings.

ThemesCategoriesRepresentative quotes from interviews and field notes
Properties of community of practice (CoP), legitimate peripheral participation (LPP), and epistemic injustice (EI)

Establishing a joint enterprise and mutual engagementJoint enterprise (CoP)Maybe it was not super clear from the beginning, but we had an idea that we wanted to address different situations, that based on our clinical experience, can be difficult to deal with. It is obvious now that we did not have a clear idea of how we wanted to do it, but eventually, it became a learning platform. (interview Pwo/OE).
Mutual engagement and Shared repertoire (CoP)The process of the [development] of education itself, it has changed a little in that we have figured out what the web-based education should look like. At first, we only made manuscripts and scenes in PowerPoint. But it turned out to be a lot that we had to rework, maybe not in terms of content, but there were demands on graphic layout and headlines and descriptions of film clips, and so on. So, it has been quite a long process. (interview Pwo/OE)

Ambiguous value of the lived experience of PwOETestimonial and hermeneutical injustice (EI)They (PwOE) have seen some of the artefacts that has been edited and just like us they can get an idea of how it turned out. Before we release it [as part of the web-based education] they will get a chance to see it. They are not involved in the process in that way of “twisting and turning” words and what is said…But they are still involved because both I and my colleague have been involved in producing the artefact with them. (interview Pwo/OE)
Mutual engagement (CoP) and testimonial injustice (EI)Discussion about module 1 in the web-based education: Pwo/OE expresses that the feeling in the artefact is good. She believes that it must be clear from the artefact that the encounters between health professionals and people with acquired brain injuries are the most important thing. Another Pwo/OE continues by saying, “we want someone [a PwOE as an actor] to describe that rehabilitation takes time but there is progress”. (field notes)

The difficulty of valuing experience-based knowledge of living with acquired brain injuryTestimonial injustice (EI)It is also perhaps based on the experience that patients we have met have said, “they (staff) don’t have time to help me or they don’t have time to wait for me”. They just put on clothes. That was probably the starting point, it does not have to take more time, and especially not after a while, if you have a rehabilitative approach. (interview Pwo/OE)