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| Examples of codes | Tentative analysis of content in themes | Subtheme | Theme | Main theme |
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(i) Feeling great responsibility, both as company and to secure the health care due to mistrust toward home-based care
(ii) Daily contact, but is seldom seen due to long distance
(iii) Don’t want to complain but cannot handle the whole situation alone
(iv) Great frustration to be relative to someone in need of care | (i) Feel and take responsibility
(ii) Close relationships
(iii) Have to step in when the care fails to meet needs | Internal expectations | Balancing and fulfilling expectations: striving to achieve a status quo | Being the person who manages a fragile life situation |
(i) Buying groceries, after the mother’s own write shopping lists
(ii) It’s also about being able to have a reason to be in contact
(iii) Wants daily visits, but relatives are unable to fulfil the expectance
(iv) She called so often that I started to get angry
(v) He calls about everything, such as changing batteries in the remote control | (i) Expect involvement of relatives
(ii) The older adults’ requirements
(iii) Have to be accessible
(iv) Be distraction from loneliness | Perceived expectations of the older adult |
(i) Home health nurse determines our daily routines
(ii) More home-based care, means even more times to adjust my life to
(iii) The days are spent waiting for staff to arrive without knowing who will come
(iv) The hospital staff don’t ask dad; they call me first | (i) Try to collaborate
(ii) Being available
(iii) Adapt everyday life after health care | Perceived expectations of healthcare providers |
(i) Dad lost his ability to walk and needed help with all mobility
(ii) She is denied more urgent visits because she has home-based care
(iii) The majority of the staff should not be allowed working with vulnerable people
(iv) He never received any rehabilitation during the pandemic | (i) New insights into different needs
(ii) Undignified care with no positive changes in sight | Experiencing a need for change | Experiencing a breaking point: change is inevitable |
(i) During the pandemic there was no support such as relatives’ centers
(ii) Lack of information meant a lot of research by themselves
(iii) Want to be involved so that the older adult don’t get tricked or misled | (i) Navigating in the health care system: a lonely work
(ii) Involvement in application | Taking steps to realise change |
(i) Quick decisions meant no time to prepare
(ii) Have to pay for short-term facility in addition to the regular rent bill
(iii) She breaks down from all responsibility | (i) Adapt an entire household to a small area at the nursing home
(ii) A stressful event with tight time limit | The emotional process of organising a move | Waiting and moving into a nursing home: a period of tension |
(i) Expected to feel at ease while waiting for admission
(ii) Why can’t they just be allowed to not feel anxiety at the end of their lives?
(iii) He was worried about not being allowed to stay at the short-term facility and no one informed him if he was | (i) Stressful information
(ii) Anxiety about being re-examined
(iii) Frustration at feeling anxious after an application | The fear of a reappraised application |
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