Review Article

Experiences of Children and Young People with a Disability in Out-of-Home Care in Australia: A Scoping Review

Table 1

The 14 included studies for analysis in this review.

CitationYearLocationMethodologyKey findingsPopulationType of care

[25]2021AustraliaQuantitative case studyThis study looks at the prevalence of children who have dual system contact between child welfare and youth justice systems and found a high prevalence of young people with neurodisability, and child welfare system responses to this phenomenon contribute to several offending-related trendsYoung people with intellectual disabilityKinship care, foster care, residential care
[26]2019AustraliaQualitative surveyThis paper examines the experiences of young people and their families who have entered aged-care facilities as out-of-home care and found that their needs are going unmetYoung people with acquired intellectual disabilityResidential aged-care
[27]2018AustraliaLiterature reviewProvides a critical examination of the literature that looks at how the rights of CYP with disabilities are heard are enacted (as choice and control) within Australia’s National Disability Insurance SchemeCYP with disabilities (not specified)Family care and OOHC supported under NDIS
[28]2023AustraliaMixed-method longitudinal studyThis study looks at children with disabilities in OOHC and how their wellbeing outcomes are associated with disadvantages from disabilities rather than placement typeCYP with disabilities (not specified)Kinship care, foster care, adoption, residential care
[29]2014AustraliaQualitative interviewsThe findings from this study highlight both positive and negative impacts on children and families in voluntary OOHC, finding that children tend to miss family and experience grief and loss; however, they report positive outlooks for the future if in permanent placements and have gained independent living skillsYoung people with disabilities (not specified)Respite care, foster care, residential care
[2]2023AustraliaLiterature reviewThis review looks at how most CYP with disabilities in OOHC have experienced trauma. However, findings indicate there is no evidence of trauma-informed care models being used in foster or kinship careCYP with disabilities (not specified)Kinship care, foster care
[30]2022International, including AustraliaLiterature reviewThis literature review looks at self-determination and independence interventions around the world that may have potential to improve children and young people with disabilities ability to express their choicesYoung people with disabilities (not specified)Not specified
[31]2020AustraliaCase studyThis study reviews a variety of data that spoke to the need for indigenous community resources as young people with disabilities lack access to adequate disability or culturally safe services that too often result in their criminalisationAboriginal young people with cognitive disability in remote areasHospital and medical, juvenile detention, residential care, adult corrections
[32]2022AustraliaQualitative case studyThis paper looks at the dynamics of care criminalisation: how surveillance and control through policing and violence are used as responses to behaviour rather than therapeutic care for complex needsYoung people with various cognitive disabilitiesResidential care
[33]2016AustraliaLiterature reviewThis research reviews available literature on how CYP and older people, both in need of respite care are segregated, proposing a model for intergenerational care that could have mutual benefitsCYP and elderly people with disabilities (not specified)Respite care, childcare and aged care
[34]2021AustraliaQualitative interviewsThis study looks at children and young people with disabilities in OOHC and their definitions and experiences of safetyCYP with intellectual disabilitiesInstitutional and residential care
[5]2023AustraliaScoping reviewThis paper synthesises literature on children with intellectual and developmental disabilities and their experiences of child protection and OOHC to understand what is known. Findings indicate increased risk of entering child protection and out-of-home care system and placement failure was a common theme with residential careCYP with intellectual and developmental disabilitiesKinship care, foster care, institutional care, residential care, alternative care
[35]2015Australia, US, UK, Canada, China, NetherlandsLiterature reviewThis review covers international material related to stability and permanence for disabled children who have been removed from their parents. Finding that they are less likely to be placed in permanent homes due to high needs and lack of supportCYP with disabilities (not specified)Foster care, adoption
[36]2015AustraliaQualitative interviews and focus groupsThis paper looks at OOHC options in rural areas where resources are scarce for people with disabilities. Findings show a lack of services that means CYP and adults with disabilities end up in psychiatric hospitals. Research calls out the need for collaborative approaches to careCarers of people (including CYP) with intellectual or developmental disabilitiesKinship care, psychiatric hospitals