The Importance of Cancer Registry Linkage for Studying Rare Cancers in Prospective Cohorts

Table 1

Percentage of Alberta’s Tomorrow Project Health and Lifestyle Questionnaire Survey (baseline) participants that responded to each follow-up survey.

Survey	Year(s) of distribution^a	% of baseline^b
Health and Lifestyle Questionnaire (HLQ)	2000-2008	100
Survey 2004 (S04)	2004	30
Survey 2008 (S08)	2008	67
Updated-HLQ (UHLQ)	2009-2011	10
CORE	2011-2015	25

^a Years of distribution indicates the years the survey was sent out or administered; surveys could have been completed and sent in for some time after distribution. ^b Rounded to the nearest whole percentage. Baseline participants are those who completed the Health and Lifestyle Questionnaire (HLQ). Participants could respond to a later follow-up survey if they did not complete a previous survey (i.e., a participant could complete S08 if they did not complete S04).