Clinical Study
Integrating Caregiver Support into Multiple Sclerosis Care
Table 1
Demographics of caregivers (
) and persons with MS (
).
| Variable | M ± SD or (%) |
| Caregiver | | Sex, female | 21 (84) | Age, years | 54.8 ± 13.3 | Race | | White | 10 (40) | Black | 14 (56) | Asian/Pacific Islander | 1 (4) | Ethnicity, Hispanic/Latino | 0 | Marital status | | Married/living as married | 19 (76) | Single, never married | 2 (8) | Divorced | 2 (8) | Widowed | 2 (8) | Education, years | 13.5 ± 3.1 | Employed, full-time or part-time | 11 (44) | Military service | 3 (12) | Relationship to person living with MS | | Spouse | 17 (68) | Parent | 3 (12) | Sibling | 3 (12) | Child | 2 (8) | Point began providing care | | Prior to MS diagnosis | 6 (24) | As soon as person with MS diagnosed with MS | 7 (28) | When person with MS began displaying MS symptoms | 9 (36) | When person with MS could no longer care for self | 1 (4) | When previous caregiver could no longer care for Person with MS | 1 (4) | Other | 1 (4) | Made work changes due to caregiving | 6 (24) | Person with MS | | Sex, male | 19 (76) | Age, years | 55.9 ± 11.6 | Race | | White | 12 (48) | Black | 13 (52) | Ethnicity, Hispanic/Latino | 1 (4) | Marital status | | Married/living as married | 16 (64) | Single, never married | 5 (20) | Divorced | 4 (16) | Education, years | 14.4 ± 2.0 | Employed, full-time or part-time | 3 (12) | Made work changes since MS diagnosis | 17 (68) | MS type | | Relapsing Remitting MS | 21 (84) | Primary-Progressive MS | 2 (8) | Secondary-Progressive MS | 2 (8) | EDSS | | Mild (0–2.5) | 12 (50) | Moderate (3.0–5.5) | 4 (17) | Severe (≥6.0) | 8 (33) | Modified fatigue impact, total (0–84) | 47.4 ± 3.8 | Physical (0–36) | 22.9 ± 1.7 | Cognitive (0–40) | 19.8 ± 2.0 | Psychosocial (0–8) | 4.6 ± 0.5 | MS impact, physical (0–100) | 49.1 ± 4.5 | MS impact, psychological (0–100) | 40.9 ± 5.6 |
|
|