Research Article
Item Selection for a New Health-Related Quality of Life Measure for Parkinson’s Disease: The Preference-Based Parkinson’s Disease Index (PB-PDI)
Table 1
Characteristics of the sample (n = 53).
| | Characteristic | Mean (SD) or N (%) |
| | Participant characteristics | | Sex | | Male | 29 (54.7) | | Age (years) | 60.0 (10.2) | | Language fluency | | English | 23 (43.4) | | French | 28 (52.8) | | Other | 2 (3.8) | | Geographical location | | Quebec | 53 (100) | | Education level | | Less than high school | 1 (1.9) | | High school | 3 (5.7) | | CEGEP or college | 14 (26.4) | | Bachelor’s degree | 14 (26.4) | | Graduate degree | 21 (39.6) | | Household income | | Less than $20,000 | 3 (5.9) | | ≥$20,000 but <$50,000 | 7 (13.7) | | ≥$50,000 but < $100,000 | 19 (37.3) | | ≥$100,000 but < $150,000 | 15 (29.4) | | ≥ $150,000 | 7 (13.7) | | Marital status | | Married/common law | 38 (71.7) | | Divorced/separated | 10 (18.9) | | Widowed | 0 | | Never married | 5 (9.4) | | Living situation | | Your own home | 47 (90.4) | | Assisted living | 0 | | Nursing home or long-term care | 0 | | Retirement facility | 1 (1.9) | | Other | 4 (7.7) | | Employment status | | Full-time | 7 (13.5) | | Part-time | 2 (3.9) | | Self-employed | 1 (1.9) | | Student | 0 | | Short-term disability | 3 (5.8) | | Long-term disability | 9 (17.3) | | Retired | 29 (55.8) | | Unemployed | 0 | | Other | 1 (1.9) | | Participation in therapeutic trial | | Yes | 3 (5.8) | | No | 49 (94.2) |
| | Participant health descriptors | | Presence of chronic disease | | Yes | 33 (62.3) | | No | 20 (37.7) | | SPDDS score | 36.7 (11.8) | | H&Y scorea | 2.5 (1) | | VAS score for self-perceived health | 66.6 (21.6) | | Years since PD diagnosis | 8.3 (6.1) |
| | Survey characteristics | | Language of completion | | English | 30 (56.6) | | French | 23 (43.4) | | Format of completion | | On their own | 49 (92.5) | | Assistance of an informal caregiver | 4 (7.6) | | Assistance of a formal caregiver | 0 |
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aMedian score and interquartile ranges (IQR) reported. SD, standard deviation; N, number; SPDDS, self-assessment Parkinson’s disease disability scale; H&Y, Hoehn and Yahr; VAS, visual analogue scale; PD, Parkinson’s disease.
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