Research Article

Self-Management Embedded in Daily Activities: A Photoelicitation Focus Group Study among Persons with Spinal Cord Injury and Their Primary Caregivers in Bangladesh

Table 2

Themes, categories, codes, and supporting data.

ThemesCategories (subthemes)CodesMeaning bearing units

Medical management
Developing and following consistent routines and habitsMaintaining prevention strategiesUsing existing healthcare strategies following adviceCleaning and changing the catheter regularly following advice from doctors (A2, B1, A7, and B6)
Using a newspaper on top of a cushion and washing hands and clothes to keep things clean (A2, B1, A7, and B6)
Changing sitting posture, therapies for back pain (A1)
Doing pressure release every 20 min (A1, A5, B2, B5, A3, B4, and PC-A1)
Not putting pressure on one (skin) area (B2)
Changing body position frequently by transferring to other seats/beds (A1, PC-A1, and PC-B5)
Monitoring skin regularly to prevent pressure ulcers (A5, PC-B5)
Stretching and doing other exercises (A1, PC-A1, B3, PC-B3)
Following a balanced dietEating nutritious food
Avoiding unhealthy food
Bowel-bladder incontinence and infections were prevented by the following:
Eating healthy and nutritious food (A1, A5, B5, and B6)
Avoiding oily food and junk food (A1, A5, and PC-B5)
Having home-cooked foods (PC-A1)
Drinking plenty of water regularly (A2, A5, and B1)
Taking food in a timely manner and in small portions (A2)
Adopting strategies from trusted laypersonsUsing medication following peer strategiesTaking antibiotics to obtain urine control, as advised by familiar persons (A4)
Learning first aid management strategies from peers to be healthy (A3)
Learning from bad experiencesPreventing recurrenceUsing an additional cushion on a wheelchair seat after experiencing pressure ulcer while playing basketball (A5)
Self-trial toward masterySelf-prescription
Trial
Taking medicine for urine infection based on the consultation with a lay relative in lieu of a physician (A3, PC-A3)
Changing medication dosage for urine infection following own judgments according to improvements (A4, PC-A4, PC-B1, B1, and B6)
Discovering new habitsSelf-derived ideas
New ways
Creating a routine urination time to prevent incontinence due to inability to hold urine (B4)
Discovering the use of gel to prevent bleeding during catheterization (A4)
Finding out the way (breathing, waiting, the pressure to pee, and catheter usage) to manage tremor during catheterization (B5)
Solving problemsDressing at home
Taking vitamin C
Dressing the pressure ulcer regularly at home because the hospital is far (B2, PC-B2). Drinking lemon juice for pressure ulcer recovery (B2)
Using health-promoting properties of daily activitiesActive involvement in outdoor activitiesEngaging in paid and unpaid work
Playing basketball
Doing a physical activity that influences physical improvement
Working in a computer/mobile phone repair shop requires frequent movement of the body (B3)
Doing business actively reduced the risk of pressure ulcers (B2, B3)
Removing objects from the top place helped release pressure from the buttocks (B3)
The routine of transferring to the vehicle to buy goods for stocking the shop improved physical condition (A5)
Going outside and riding in a vehicle minimized physical problems (A5)
Playing basketball decreased physical problems and improved balance (A3)
Doing exercise for physical improvement (required for returning to a job) reduced the risk of secondary complications (B3)
Emotional management
Developing authority over feelings and thoughtsEngaging in recreational activitiesParticipating in meaningful tasks
Recreation
Resuming life while upset and depressed through browsing the Internet (A1, A3, B4, B3, and B5), using social media (A1, A2, A3, A4, A5, B1, B2, B3, B4, and B5), watching television (B2, B5), chatting with friends (A1, A3, and B5), reading books and writing an autobiography (A1, B5), listening to music (A3, B2), playing mobile games (A1), and traveling for sightseeing (A1, B5)
Creating a positive environmentChanging situations
Avoiding unwanted moments
Going outside from home, where boredom and negative thinking were increased (A2)
Spending time alone away from all (A2)
Leaving the situation that created anger (B1)
Positive reframingPositive thinking
Having faith in self
Setting an action plan
Thinking positively and making a fresh start against feeling depressed (A3, PC-A3)
Having faith in oneself for the future (A3)
Realizing that this is not the end of life (A4)
Eagerness to get back to studying (A4, A6)
Learning to be skillful in a wheelchair (A2)
Accepting the truth and planning for the future (PC-A6)
Self-guidanceAcceptance
Comparing with peers
Not feeling different
Admitting the consequences as natural and going with the flow (A1, PC-A5)
Explaining to self not to let the sorrows take control over their capacities (A5)
Convincing one’s mind that accidents happen (B2)
Gaining mental strength through seeing others in the same condition (A1)
Not feeling alone and taking inspiration from others with disabilities (B1)
Spiritual healingReligious beliefPraying to God adds extra mental power to fight negativity (A3, B1, and A4)
Believing that God has a better plan (A1, A3, and PC-B4)
Family love and supportEncouragement of life
Motivating to move on
Being supported by close ones
Giving up committing suicide and thinking of wife’s and son’s futures (B3)
Arranging a tour by the family to cheer up the mind (B5)
Staying at one’s side and being consoled in tough times (A1, PC-A1)
Being encouraged to move ahead (A2)
Physical improvement facilitated happinessHope for becoming independent
Inspiring themselves to be active
Walking with frame replaced sorrows with happiness and inspiration for trying more (A4)
Improving balance brings a genuine smile to the face (B3)
Forming inner peace by rewardsBusiness in productive activityBusiness
Spending quality time
Being busy in the shop gave the feeling of being a productive person and to never think about sorrows (B4)
Passing enjoyable moments in the shop because many people gather and chat (B1)
Spending time in the shop and producing income fight depression (B2)
Sense of prideBeing a topper
Employment
Becoming a top basketball player with remunerations improved confidence and willpower (A3)
Earning money equal or higher than that of normal people makes one proud and satisfied (B1, PC-B1)
AutonomyIndependence
Social identity
Achievement
Serving the family improved independence (B4)
Family and society gave importance to one’s opinion (B4)
Happy to gain a respectable social identity through running the shop (B2)
Achieving many things with a disability-inspired life (A2)
Role management
Regaining responsibilities in family and societyContributing roles dynamicallyFulfilling family role
Becoming an advisor
Shifting roles
Managing father’s business during sickness (A2)
Helping mother with household chores (A2, A4, and A3)
Managing household work alone while the mother is at her job (A4)
Taking care of the child and home while the wife is at her job (B2, PC-B2)
Reducing the burden on a family member by helping oneself (A1)
Earning for the family through income-generating activitiesBeing head of the family
Serving the family
Relying on self
Building a career
Starting a poultry shop with good profit (A2)
Starting a shop after vocational training to serve as the head of the family (B1, B3, and B4)
Getting remuneration by playing basketball (A3)
Building up a career (A3, B1, B2, B4)
Being connected with others in any situationMaintaining social connectionTalking over the phone instead of visiting sick elderly grandparents (A4)
Chatting with friends on social media to not lose them (B5)
Going sightseeing with old friends (B4)
Connecting with relatives via the Internet (B1)
Engaging in charitable activityHelping others in needProviding unconditional helpRepairing other persons’ wheelchairs without charge (A5)
Sending required items to peers in remote areas (A5, B1)
Advising peers living in remote areas (A5, B1)
Providing information and education to peers through a Facebook group (A1, A2, and B2)
Delivering social serviceGiving a special discount
Raising awareness about accidents
Providing special discounts to disabled clients in the shop (B2)
Raising awareness among people about spinal cord injury, especially scarf injury (B1)
Management of social complexities
Relocating to another environmentMoving to a comfortable placeMoving to another place
Maintaining distance
Moving to a city area and creating a new start to avoid negative social attitudes (A3, A4, and B3)
Shifting to another place and keeping a good relationship with close people from a distance (A5)
Behaving in an assertive mannerHandling conflict with close people warmlyEmotional attachmentConvincing close people by asserting their need and using emotion when being deprived from usual support (B1, B2, and B3)
Showing modest behavior to gain empathy (B1, A1, and A5)
Dealing with social stigmaChanging perceptionsGiving a successful example of another person with SCI (A2, PC-A3)
Explaining the pathogenesis and prognosis of SCI to the society (A2, B2, B4, and A4)
Resigning to deprivationResource utilization
Compensation
Asking for help from traffic police to get on public transport when the driver denied (A5)
Continuing to study at home due to inaccessible toilet at the school (A5, B4)
Proving self-worth against social negligenceBuilding capabilityChanging the attitude of a restaurant owner through paying the bills and giving tips (B4, PC-B4)
Showing the capability of living without support (B2)
Advocacy for social changeStressing accessible environmentEnsuring accessibilityAsking the owner repeatedly for a ramp to the house (PC-A5)
Campaigning for an accessible entrance to the shopping mall (B1, A5, and PC-A5)
Raising awareness to build a ramp and elevator in a newly constructed building (A2, B2)
Claiming human rightsDisability rightsAsking for and raising awareness about disability special discount tickets and services in the museum (B1, B5, PC-B3, and B3)
Ensuring disability priority service in the hospital and public places (B2)

PC: primary caregiver.