Perspectives on Care for Late-Stage Parkinson’s Disease

Table 1

Participants’ characteristics qualitative interview study, n = 20.

Participant number	Interview category	Gender	Age	HY stage	Dwelling place	Partner	Cognitive function (MMSE)	Motor function (UPDRS III)	Nonmotor symptoms (NMSS)	Depressive symptoms (GDS-30)
1	Patient	f	88	4	Home	Yes	20	39	49	21
2	Husband	—	—	—	—	Pat #1	—	—	—	—
3	Daughter	f	90	5	Residential care facility	No	20	44	147	7
4	Patient	m	83	4	Residential care facility	Yes	24	34	87	17
5	Patient	f	79	4	Home	No	24	35	46	12
6	Wife	m	73	4	Home	Yes	15	39	109	12
7	Patient	m	64	4	Home	Yes	19	12	106	3
8	Patient	m	65	4	Home	Yes	28	21	104	8
9	Wife	—	—	—	—	Pat #8	—	—	—	—
10	Patient	m	83	4	Home	Yes	21	48	35	8
11	Wife	—	—	—	—	Pat #10	—	—	—	—
12	Patient	m	89	4	Home	Yes	26	26	51	4
13	Wife					Pat #12
14	Patient	m	86	4	Home	Yes	21	26	92	10
15	Wife					Pat #14
16	Patient	m	84	5	Home	Yes	18	61	82	9
17	Wife					Pat #16
18	Patient	m	85	4	Residential care facility	Yes	28	18	93	21
19	Patient	f	76	4	Home	Yes	22	41	51	10
20	Husband				Home	Pat #19

Participants in chronological order. Shaded area: informal caregivers; patient demographic and clinical data are shown in cases where the informal caregivers were not part of a dyad. HY, Hoehn and Yahr staging scale (score range I–V, higher = worse); MMSE, mini-mental state examination (score range 0–30, higher = better); UPDRS, Unified PD Rating Scale, part III = motor examination (score range 0–108, higher = worse); NMSS, Nonmotor Symptoms Scale (0–360, higher = worse); GDS-30, Geriatric Depression Scale (score range 0–30, higher = worse). Patient in the process of moving to a residential care facility.