Research Article

The Lived Experience of Caregiving and Perception of Service Provision among Family-Caregivers of People with Late-Stage Parkinson’s: A Qualitative Study

Table 1

Participant characteristics (family-caregivers), n = 11, and characteristics of the persons with Parkinson’s they cared for.

Demographic details of participants (family-caregivers)

Gender
 Women (n)10
 Men (n)1

Relationship with person with Parkinson’s
 Spouse (n)7
 Daughter (n)3
 Sister (n)1

Living arrangements
 Spouse living with a person with Parkinson’s (n)6
 Spouse living alone. Person with Parkinson’s residing in a nursing home (n)1
 Family member living separately but visiting regularly (n)3
 Family member living with a person with Parkinson’s (n)1

Characteristics of person with Parkinson’s
 Duration since PD diagnosis
  Range (years)8–27
  Mean (years)17

H&Y stage
 Stage 4 (n)4
 Stage 5 (n)7

Age
 Range (years)70–88
 Average (years)78

Education
 Range (years)8–16
 Average (years)12