The Lived Experience of Caregiving and Perception of Service Provision among Family-Caregivers of People with Late-Stage Parkinson’s: A Qualitative Study
Table 2
Family-caregiver interview topic guide.
Interview with family-caregiver living at home with a person with Parkinson’s
Interview with family-caregiver of a person with Parkinson’s living in a nursing home
(i) Personal needs and meeting of needs
(i) Needs and meeting of needs for both parties
(ii) Opinion about professional care received
(ii) Opinion about the residential care facility (including staff competence and medication)
(iii) Impact on personal health and life situation
(iii) Influence on care provided at the facility
(iv) Availability and opinion of respite services
(iv) Decision-making process to relocate to institutional setting (when, by whom, reasons, and information available)
(v) Opinion of residential care facility/nursing home, and if considered as a future option
(v) Feelings related to the move, at the time and in the present
(vi) Reasons current care situation
(vi) Management of care prior to the relocation and what would have been necessary to continue living there
