Research Article
Exploring the Caregiver Role after Deep Brain Stimulation Surgery for Parkinson’s Disease: A Qualitative Analysis
Table 1
Breakdown of how superordinate theme 1 from husband 3 year 1’s interview evolved.
| Themes IPA interview table husband 3 year 1 | Keywords taken from transcript |
| Superordinate theme 1: if she is well, I am well | PET1: living a combined life | Prior to and post DBS, he feels the effects of PD so much he feels as if he has it too | I do not think of myself as (a carer) It is just our life… We actually say, you know, we have got Parkinson’s, if you like so it is more inclusive | His life is very entwined with hers, DBS makes their conjoined lives better now but he cannot stop their combined life from declining | It is like a combined life, is how I see it really We thought well this is not working very well so we will do it ourselves | PET 2: the caring carer irrespective of DBS | He likes how well he cares for her and is proud that he maintained his relationship as a husband rather than carer prior to DBS | I have to help with all that… I do not always wait to be asked either, it is quite a sort of delicate… | He desperately wants to ease as much of her suffering as possible and fears that he is not able to post DBS | I worry sometimes, I am not being thoughtful enough, have missed something… anxious I: is that even now after DBS? H3Y1: generally, yeah |
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