Diabetes-Related Quality of Life Assessment in Children following Total Pancreatectomy with Islet Autotransplantation
Table 3
TPIAT PedsQL DM scores over time after TPIAT.
3 month
6 month
9 month
12 month
18 month
24 month
value (over 24 months)
N = 36
N = 29
N = 29
N = 29
N = 21
N = 16
Diabetes symptoms summary score
64.6 ± 14.3
61.9 ± 15.7
66.3 ± 17.1
67.5 ± 20.6
59.3 ± 18.7
56.5 ± 12.9 ¥
0.03
Treatment barriers score
85.6 ± 13.6
84.7 ± 13.6
84.0 ± 16.0
86.4 ± 14.0
77.3 ± 20.2
77.5 ± 18.3
0.07
Treatment adherence score
85.8 ± 14.2
87.2 ± 11.1 n=27
89.9 ± 12.4
88.8 ± 13.0
86.7 ± 13.8
85.8 ± 11.6
0.90
Worry score
74.0 ± 23.7
73.0 ± 27.6 n=27
73.3 ± 27.9
75.0 ± 25.5 n=28
68.3 ± 30.1 n=20
67.2 ± 24.9
0.19
Communication score
76.9 ± 21.8
77.0 ± 20.8 n=28
81.7 ± 22.3
82.1 ± 24.1
75.6 ± 28.0
71.5 ± 25.6
0.70
Diabetes management summary score
80.6 ± 11.9
80.7 ± 15.0 n=28
82.2 ± 15.8
83.0 ± 13.8
77.2 ± 19.4
75.5 ± 15.3
0.24
Total score
74.0 ± 11.0
72.4 ± 13.5
75.8 ± 14.0
76.6 ± 15.7
69.7 ± 16.3
67.8 ± 12.3 ¥
0.049
Data presented as means ± standard deviations. only ≥5 years old filled out by patient. ¥ Average score difference exceeded minimal clinically important differences (MCID) over interval. Bold values meet criteria for statistical significance (p value <0.05).
