Diabetes-Related Quality of Life Assessment in Children following Total Pancreatectomy with Islet Autotransplantation

Table 5

PedsQL DM scores TPIAT group subanalysis: on or off insulin.

	TPIAT N = 32		value
	On insulin at 12 months	Off insulin at 12 months
	N = 21	N = 8
12 months
Diabetes symptoms summary	66.1 (53.3–73.3) n = 21	81.7 (44.2–94.2) n = 8	0.48
Treatment barriers	90.0 (75.0–100) n = 21	100.0 (80.0–100) n = 8	0.14
Treatment adherence	91.7 (75.0–100) n = 21	95.8 (79.2–100) n = 8	0.96
Worry	70.8 (45.8–100) n = 20	91.7 (70.8–100) n = 8	0.25
Communication	87.5 (75.0–100) n = 21	96.9 (84.4–100) n = 8	0.37
Diabetes management summary	79.7 (71.3–94.4) n = 21	89.4 (81.6–99.5) n = 8	0.23
Total score	75.8 (62.9–84.8) n = 21	88.7 (64.8–95.8) n = 8	0.35
	On insulin at 24 months	Off insulin at 24 months
	N = 11	N = 5
24 months
Diabetes symptoms summary	53.3 (48.3–58.3) n = 11	71.4 (63.3–73.3) n = 5	0.03
Treatment barriers	75.0 (55.0–85.0) n = 11	100.0 (80.0–100) n = 5	0.12
Treatment adherence	83.3 (75.0–91.7) n = 11	91.7 (90.0–100) n = 5	0.06
Worry	62.5 (50.0–75.0) n = 11	75.0 (50.0–100) n = 5	0.52
Communication	68.8 (37.5–100) n = 11	81.3 (50.0–100) n = 5	0.73
Diabetes management summary	75.5 (60.1–84.8) n = 11	74.7 (72.9–100) n = 5	0.31
Total score	66.7 (54.5–72.7) n = 11	75.0 (67.2–87.5) n = 5	0.09

Data presented as median (25^th–75^th percentiles).