| | Theme | Examples of themes | Community health worker impact |
| | Work and childcare | “If I’m gonna leave her with someone who don’t know how to manage diabetes, it can be dangerous. I’m not gonna be in peace, and it can be dangerous for her, so I cannot leave her with someone, like I have some neighbors, I have some friends, I have a babysitter from her baby time, and that can play and they can watch, of course, but they don’t know how to deal with diabetes.” (1027) | “She keep working, she also works with [social worker], the social worker at the endocrinology, they keep sending the letters and request for the insurance company to provide me the private nurse, like the nurse that can come to my house and stay with [participant’s daughter], in case I have to do some tests or something, like I have to do some.” (1027) |
| | Insurance and finances | “I can see it going to possibly be a challenge at some point. Right now, thankfully, we’re able to qualify for food stamps … but the amount that we’re getting is a lot because of the COVID-19. So once that stops, I think it’ll stop in September, then I’ll definitely be really budgeting everything to try and figure out how to afford to eat more … and just like eating healthy is more expensive typically, and then throwing in the celiac, it is super expensive…But I foresee it in the future happening again.” (1024)
“And here’s the thing, I’m not comfortable by any means, no. We live paycheck to paycheck, but I have a paycheck. It’s gonna sound odd, but knowing that there’s this program that’s available … it’s a comfort, even though we haven’t needed to use any of the resources that may be out there, it is a comfort knowing that they’re out there for other people who may need them.” (1008) | “Yeah, she was trying to refer me to like some rental assistance. And a lot of the places that I called, it’s like COVID-19 related you had to be to get the rental assistance. There was one place that did help me and they were able to help me once a year, once a year. So, they did help me towards December, so I just re-applied with them from March.” (1016)
“So I mean, he’s helping me right now trying to get my tax returns from last year and this year, because they held them last year, because one of my employers reported my leasing, so I haven’t gotten that, no stimulus money … and my tax return is being held again now this year … I have to find a tax advocate on their end, to look into it for me. I’ve called them like three times, they said they’re gonna call me back, they never called me back. There’s a constant battle so [CHW] said he was gonna do like a conference call, or we’ll do it in person (together).” (1022) |
| | Social support | “Everybody says there’s so many support groups. I felt like when I left the hospital, it got extremely hard, I know [my partner], he’s been trying to help me and I’m real bad with this internet communication stuff. I’m like the worst like, even my teacher said, I sent her an email, you’ve got to call me because it’s hard. Checking emails is the worst.” (1013) | “I feel like her role is just actually, I look at it more like … a friend, like someone who’s there to confide in to basically help with resources and get us in contact with the proper help that we might need … But yeah, with [CHW’s name], she’s able to help us and just literally help us with our, like me how I felt, how can I take this? I had a moment where I felt like I wasn’t being the mom that I should be, right. And then with her, what’s the word I’m thinking of? It’s like, literally right there. She gave me like that pep talk.” (1012) |
| | Impact on school | “The school, they were understanding but not very understanding, because I have to get him up for the first month at two in the morning and he was tired and won’t get up for class and they weren’t very lenient, they were like he is late, if sugar was high, they will get mad, because I’m like, “Listen, he has to get up, we got to check his sugar, if it is high, I got to correct it,” they will get mad. So, it was just crazy and then when they’re supposed to take the PSSAs, they actually opted [Child] out of it, because they didn’t want him coming to school taking it and then his sugar like wasn’t stable… I opted for him to go in person … and then his guidance counselor called me like a week later, she like me, the nurses, teachers or principals talked and we feel like it’s best for [Child]’s health that he just stay home and will excuse him for the PSSAs.“ (1021) | “The only thing is that 504 Plan, we didn’t get that until in March when this COVID-19 hit. It’s like he didn’t even need it now because they were staying home. Yeah, (the school administrators) were playing around like that. They were just giving me all these other excuses. I don’t know what it really was. Then finally, [CHW’s Name], reached out to them more than just what I would do it. She got on that more. I think that was a help too, that it’s a serious thing.” (1002) |
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