Clinical Study
Identification of Personal Factors in Motor Neurone Disease: A Pilot Study
Table 1
Characteristics of motor neurone disease/amyotrophic lateral sclerosis (MND/ALS) participants—demographics and disease features.
| | Variable | Average/Frequency |
| | Age (mean ± SD (range) | (43–80) | | Sex [ (%)] | | | Male | 29 (65.9) | | Female | 15 (34.1) | | Marital status (, %) | | | Married/partner | 34 (77.3) | | Divorced/separated/single | 10 (22.7) | | Race (, %) | | | Caucasian | 44 (100%) | | Living [ (%)] | | | Alone | 8 (18.2) | | Family | 36 (82.8) | | Geographical area | | | Metropolitan [ (%)] | 27(61.4) | | Rural [ (%)] | 17 (38.6) | | Diagnosis of ALS (El Escorial criteria) [ (%)] | | | Clinically definite ALS | 14 (31.8) | | Clinical probable ALS | 17 (38.6) | | Probable ALS (Lab Supported) | 5 (11.3) | | Possible ALS | 4 (9.1) | | Suspected ALS | 4 (9.1) | | Amyotrophic lateral sclerosis functional rating scale-revised (ALSFRS—R [ (%)] | | | 0–12 | 3 (6.8) | | 13–24 | 15 (34.1) | | 25–36 | 12 (27.3) | | 37–48 | 14 (31.8) | | Comorbidities (, %) | | | Yes | 28 (63.6) | | None | 16 (36.4) | | ≥2 comorbidities | 14 (50.0) | | Clinical symptoms (, %) | | | Fatigue | 34 (77.3) | | Pain | 22 (50.0) | | Spasticity/cramps/spasms | 32 (72.7) | | Emotional lability | 21 (47.7) | | Shortness of breath | 8 (18) |
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