Identification of Personal Factors in Motor Neurone Disease: A Pilot Study

Table 2

Personal factors reported by participants with motor neurone disease (MND) which affected their experience of living with MND.

Personal factors category	Personal factors examples
Demographic factors	Gender
	Race
	Age
	Educational status
	Socioeconomic status
Emotional states	Frustration
	Depression
	Stress
	Anxiety
	Fear
	Worry
	Degrading
	Grumpy
	Loss of confidence
	Anger
	Self-esteem
	Embarrassment
	Hope (both hopeful and hopeless)
	Guilt
	Grief
	Loss
	Gratitude
Coping strategies and styles	Problem solving
	Search for information
	Planning
	PositivityAcceptance
	Humour
	Religion
	Using support
	Denial
	Avoidance
Personality	Stubborn
	Easy-going
Beliefs	Religious beliefs
	Self-esteem
Attitudes (of the patient)	Grateful attitude (towards family and health professionals)
	Fighting attitude
	Attitude towards assisted suicide
	Being organised
“Other”	Perceived support