Research Article

The Impact of Raising Children with Barth Syndrome on Parental Health-Related Quality of Life and Family Functioning: Preliminary Reliability and Validity of the PedsQL™ Family Impact Module

Table 2

Internal consistency of reliability and item-total correlations of the PedsQL FIM.

Scale (number of items)Unaffected ()BTHS ()
Cronbach’s Cronbach’s

Parental HRQoL (20)0.94.477-.8460.96.585-.874
 Physical functioning (6)0.87.713-.8530.93.761-.954
 Emotional functioning (5)0.88.716-. 9010.90.793-.910
 Social functioning (4)0.88.848-.8840.92.866-.916
 Cognitive functioning (5)0.91.798-.9070.96.902-.962
Communication (3)0.78.810-.8880.56.637-.722
Worry (5)0.92.794-.9400.80.667-.830
Family functioning (8)0.94.727-.9130.88.578-.832
 Daily activities (3)0.81.807-.9130.94.904-.967
 Family relationships (5)0.95.879-.9380.93.809-.936
Total (36)0.96.434-.8140.96.349-.836

Note: = item-total correlations. . .