Nationwide Awareness Campaign and Call for Dental Screening for Hereditary Hemorrhagic Telangiectasia in Germany

Figure 2

First contacts to the German self-help group per month. Distribution of all 411 first contacts to the German self-help group from 09/2016 to 09/2019 by different communication channels and in relation to the publications of the awareness campaign. After publication of the article the number of first contacts to the German self-help group via phone calls and emails increased. Mentioning the publications of the awareness campaign in the independent (patient led) closed facebook® group also led to a higher number of activities. Due to mainly technical reasons the documentation for the whole period is only complete for first contacts by phone. The period of documentation is limited from 04/2018–09/2019 due to a hard drive problem of the self-help group in spring 2018. Documentation of the new contacts by internet forum and facebook® started in 1/2017, however, it was stopped preterm for the internet forum due to a crash of the forum in spring 2018.